The Florida Department of Health and Human Services, the Alpha-1 Foundation and the University of Florida College of Medicine sponsor an awareness, screening and detection program for Alpha-1. The program is free to Florida residents. It is administered through doctors’ offices using a finger stick test available from the Alpha-1 Foundation. Test results are mailed directly back to the doctor.
Free Testing in Florida
The Alpha-1 Foundation Alpha-1 Detection Lab is located at the University of Florida. Mark L. Brantly, MD, has directed the lab since 1998 and the lab has done all testing for the State of Florida Alpha-1 Detection Program since 1999. Testing for Alpha-1 is simple, quick, and highly accurate. The finger stick system requires only a small prick to the finger and a few drops of blood on the test card. The sample is sent to the lab for processing and results are typically ready in two weeks. For test kits, contact Laura Pearson at the Foundation, toll free at (877) 228-7321 ext. 250 or by email at firstname.lastname@example.org. For test results, contact the lab at (866) 284-2708 or email@example.com.
Confidential free testing
Many people at risk for Alpha-1 delay being tested for this genetic condition due to concerns about privacy of test results. The Alpha-1 Foundation supports a confidential opportunity to be tested for Alpha-1 through a program called the Alpha-1 Coded Testing (ACT) Study. This research study, directed by Charlie Strange, MD, is conducted at the Medical University of South Carolina (MUSC) and examines people’s thoughts and feelings about the risks and benefits associated with learning genetic information. The test can be completed at home and results are mailed to the participant’s home. Anyone can ask to be tested. A short pre- and post-test questionnaire is required. ACT Study testing is free and confidential. For information, contact the Alpha-1 Research Registry Program at MUSC toll-free at (877) 886-2383 or firstname.lastname@example.org.
Education and Outreach
The Alpha-1 Foundation provides speakers for Grand Rounds, professional training, medical organization meetings, and community service groups. The Foundation is an approved provider of Continuing Education Units for the State of Florida, and lectures are scheduled regularly. For information, contact Laura Pearson (877) 228-7321 ext. 250 or email@example.com.
The Foundation offers Continuing Medical Education (CME), Continuing Education Units (CEU) and Continuing Respiratory Care Education (CRCE) programs.