In 1993, Marvin Sineath was diagnosed at age 46 with Alpha-1. His lung capacity was 41 percent.
“Before I was diagnosed, I knew something was wrong with my lungs,” says Sineath. “I ran and exercised my whole life. However, during the spring, regular exercise became incredibly tricky. In addition, as someone who worked in the auto parts business, breathing in the garage became more difficult too. It took me five doctors and seven years for me to get a proper diagnosis.”
As an Alpha-1 Support Group Leader from Charleston, SC, Sineath has been counseling others with Alpha-1 for 13 years. He will be among the many attendees during the Alpha-1 Education Day on Oct. 19 at the Hilton Charlotte – University Place located on 8629 JM Keynes Drive in Charlotte, NC.
“These types of patient educational events are very important and something I always look forward to,” Sineath says. ”Sometimes those that are newly diagnosed with Alpha-1 think they are all alone. When they attend, they can meet others like them. It’s also a wonderful opportunity for them to listen and learn … from physicians, genetics, current research and public policy, there are always great presentations to put their minds at ease.”
The event is sponsored jointly by the Miami, FL-based Alpha-1 Association and Alpha-1 Foundation. Speakers include Charlie Strange, MD, Director at the Alpha-1 Foundation Research Registry and Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina. He will speak about Alpha-1 lung and liver disease. In addition, Michael T. Czarnecki, MD, Total Care, Critical Care Medicine, Internal Medicine, Pulmonology will speak about the importance of pulmonary rehabilitation. Symma Finn, PhD, Health Science Administrator, National Institute of Environmental Health Sciences, will also speak about environmental risks for lung and liver disease.
Angela McBride, the Alpha-1 Foundation’s director of community relations and development, will present an update on current research. Alpha-1 Association Executive Director Marlene Erven will talk about upcoming events.
There will also be roundtable discussions and exhibitor displays, along with a complimentary lunch.
To make reservations for the program, and a free patient dinner Friday, Oct. 18 at 7 p.m., contact the Alpha-1 Association, 800-521-3025, ext. 308.
To make hotel reservations, please contact the Hilton Charlotte – University Place at (704) 547-7444. The group rate is $109.95 plus tax. Reservations must be made by Oct. 18 to guarantee rate. The booking code is Alpha-1 Association.
Get more information and the event agenda here.