Publications

Alpha-1-To-One magazine

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Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

The Winter 2013 issue includes the story of the Johnson family and their quest to help find a cure for Alpha-1, plus these stories:

  • The molecule that changed our world – the discovery of Alpha-1 Antitrypsin Deficiency led to more and more scientific breakthroughs that changed our understanding of diseases ranging from cystic fibrosis to Alzheimer’s disease;
  • Many more lungs donated for life-saving transplants can now be saved and used, thanks to the protocol created by respiratory therapist Sharon McRee;
  • And the story of A.J. Mosley, who was the first volunteer to receive an infusion in the study of Alpha-1 augmentation therapy that won approval from the U.S. Food and Drug Administration.

 

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Educational and research brochures

All of our educational and research brochures are available for download. You may download a copy of our brochures and print them if you like. To start your download, click on any of the links below.

Educational:

                                                      
What is Alpha-1?           What does it mean to      The Liver and Alpha-1       It’s all in the Family
.                                        be an Alpha-1 Carrier?                                                       (Family Testing)

                 
Issues in End of                  A Guide for the Recently
Life Care                                Diagnosed Individual

Research:

                                   
Alpha-1 Registry               Research Questionnaire         Alpha-1 Testing Study    Find an Alpha Doc

Spanish:

                                 
¿Que es el Alfa-1?            ¿Que significa ser            El Higado y Alfa-1
.                                          portador de Alfa-1?

Healthcare Providers:

Healthcare Provider’s Guide