News Archive

Alpha Daryl Kunz draws strength from community, cycling

What if your passion preserved your life? Would you think about it differently, even to the point of making it a priority? For Daryl Kunz, whose passion for 20 years has been cycling, these questions are more than rhetorical musings.

read more…

Alpha-1 Foundation CEO John Walsh elected to 2015 NHC Board of Directors

 

John Walsh

John Walsh, president and co-founder of the Alpha-1 Foundation, has been re-elected to the National Health Council‘s 2015 Board of Directors.

Walsh served on the Board this year, and as NHC Board Chair in 2005-06. Read more about him  read more…

FDA OKs system that aims to make blood plasma donation safer, but experts have reservations

The Food and Drug Administration on Tuesday approved the first system that could be used by blood banks to destroy viruses and bacteria in donated blood plasma, potentially making transfusions safer.

The  read more…

Study: E-cigarette use has overtaken smoking among youths

A new federal survey has found that electronic cigarette use among teenagers has surpassed the use of traditional cigarettes as smoking has continued to decline. Health advocates say the trend for e-cigarette use, or vaping,  read more…

‘Allergy & Asthma Today’ features article on how Alpha-1 mimics asthma and COPD

Doreen Flook

The Winter 2014 issue of Allergy & Asthma Today, the Allergy and Asthma Network (AANMA)’s quarterly magazine, features the article “How Alpha-1 Mimics Asthma and COPD,” by Alpha-1 Foundation Communications Director Bob Campbell.

He interviews Doreen Flook who, like many people  read more…

National Health Council launches upgraded site to help with health insurance choices

The National Health Council has launched its newly upgraded website, PuttingPatientsFirst.net. The website gives people the tools to gain a better understanding of their options in the health insurance marketplace and find coverage that meets their individual health care and budget needs.

In  read more…

The Alpha-1 Project awards NCATS fellowship to Michael Iannotti

The Alpha-1 Project has named Michael Iannotti to its postdoctoral fellowship position at the National Institutes of Health’s (NIH) National Center for Advancing Translational Sciences (NCATS).

Michael Iannotti

Iannotti was chosen after a 10-month interview process from among world-class candidates, says  read more…

FDA approves ramucirumab for non-small cell lung cancer

The U.S. Food and Drug Administration (FDA) on Dec. 12 approved ramucirumab (Cyramza, made by Eli Lilly) to include the treatment of metastatic non-small cell lung cancer.

Earlier this year, the drug was approved for the treatment of gastric cancer.

Ramucirumab is a  read more…

Serious stuff: Report, teen campaign laud Florida for leading drop in youth smoking

Yes, seriously: Since 2005, Florida’s teen smoking rate has dropped by half, from 15.7 percent to 7.5 percent.

Not only that: Florida’s youth are less likely to smoke than kids in every other state but Utah, according to a new study by  read more…

PCORI to fund comparative effectiveness research for hepatitis C drugs

The Patient-Centered Outcomes Research Institute (PCORI), established under the Patient Protection and Affordable Care Act to fund and promote research into how conditions and diseases should be diagnosed and treated, announced plans to award grants totaling $50 million for clinical effectiveness  read more…

Parts of spending deal could have long-term impact on healthcare

Buried in the spending deal that congressional negotiators announced on Tuesday are several nuggets that should be of interest to hospitals, home health providers and pharmaceutical companies. They won’t have any immediate impact but could lay the groundwork for significant  read more…

‘Naples Daily News': Frustrated by late Alpha-1 diagnosis, Casey Wolff joins research studies

Casey Wolff, an immigration attorney who lives in Naples, FL, recently made the front page of the Naples Daily News, a big boost in awareness for a little-known condition.

Casey Wolff works at home while getting his weekly augmentation therapy treatment.  read more…

21st Century Cures initiative seeks feedback by Jan. 5

The House Energy and Commerce Committee on Tuesday released its latest white paper in the 21st Century Cures initiative. The paper solicits feedback regarding the regulation of in vitro diagnostic test kits and laboratory developed tests. All comments can  read more…

Scoring system for lung cancer screening debuts

A system of scoring lung lesions observed in screening studies was reviewed in Chicago by researchers for the American College of Radiology (ACR) who hope the new tool will be as successful for lung cancer screening as ACR’s BI-RADS has been  read more…

Irish Health Minister Varadkar meets with staff at Alpha One Foundation in Dublin

Ireland’s Minister for Health Leo Varadkar on Monday visited the Alpha One Foundation, based in the Royal College of Surgeons in Ireland Smurfit Building at Beaumont Hospital in Dublin, to learn more about Alpha-1.  

Alpha One Foundation staff  read more…

Feds urge marketplace consumers to look for better deals In 2015

More than 70 percent of people who currently have insurance through the health law’s federal online marketplace could pay less for comparable coverage if they are willing to switch plans, officials said Thursday.

With a Dec. 15 deadline looming for coverage  read more…

CMS: Special Medicare enrollment period for Western New Yorkers affected by storms

The Centers for Medicare and Medicaid (CMS) announced on Dec. 1 that people in Western New York affected by the recent winter storms will have a special enrollment period if they are unable to complete their Medicare enrollment for  read more…

Healthcare spending growth lowest on record; number of uninsured down by 10 million

U.S. healthcare spending grew by the slowest rate in more than a half-century last year, government analysts said Wednesday. But a speed-up is coming as the economy gets traction and the new health care law covers more people.

The  read more…

Months after record-setting surgery, tiny Alpha is having a very special Christmas

It’s the first Christmas for 22-month-old Aspen Erickson after her life-saving liver-kidney transplant — the smallest transplant of its kind ever on record.

When she underwent surgery this past June, Aspen weighed just 17 pounds. She was gravely ill and running  read more…

Foundation issues statement as FDA reviews ban on blood donations from gay men

Currently there is a lifetime deferral for blood donations by men who have had sex with other men (referred to as “MSM”). Should this policy be changed?

An advisory committee at the Food and Drug Administration (FDA) on Tuesday mulled the  read more…