News Archive

Alpha-1 Canada urges Ontario Legislature to halt bill banning payment to plasma donors

A bill currently before the Ontario (Canada) Legislature could have life-threatening consequences for many vulnerable Ontarians, Alpha-1 Canada warns. 

Bill 178, the Voluntary Blood Donations Act bans Ontarians from being paid for plasma donations.

Ontario Health Minister Deb Matthews says she is “taking  read more…

Rally for respiratory health (and Alpha-1 testing) at May 3 Lung Association event in Seattle

The American Lung Association is hosting a “Respiratory Rally,” a free patient education event for people with chronic lung disease, on Saturday, May 3 in Seattle, WA.  

The event will focus on learning how to manage lung conditions including Alpha-1, asthma, lung cancer,  read more…

E-cigarette marketing aimed at youths, Congress members’ report says

An investigation by Congress members into electronic cigarette companies’ marketing practices found that major producers are targeting young people by giving away free samples at music and sporting events and running radio and television advertisements during youth-oriented  read more…

Hospitals test less invasive procedures to help people with COPD breathe easier

Hospitals are testing new procedures to help people with chronic obstructive pulmonary disease breathe easier without major surgery.

More than 15 million people have been diagnosed with chronic obstructive pulmonary disease, or COPD, according to the Centers for Disease Control and Prevention.  read more…

Budget office: Obamacare will cost billions less than expected

The cost of expanding coverage under the Affordable Care Act will be billions less than previously expected, according to a report released Monday.

An analysis from the nonpartisan Congressional Budget Office found that the coverage provisions of the ACA, also known as Obamacare,  read more…

NIH closes stem-cell research program after funding one project, journal reports

Stem-cell researchers at the National Institutes of Health (NIH) are frustrated and confused following the demise of the agency’s Center for Regenerative Medicine (CRM), according to a story published April 8 in Nature science journal.

The program’s director, stem-cell biologist Mahendra  read more…

On lung transplant list, Kansas man with Alpha-1 holds out hope for return to life he loves

David Jensen is waiting. Waiting for new lungs, and a new life.

In the nearly 20 years since doctors diagnosed Jensen, of Lawrence, KS, with Alpha-1, his lungs have degenerated, slowly taking with them his strength, livelihood, financial stability and independence.

Jensen,  read more…

Alpha-1 Foundation invites applications for Gordon L. Snider Scholar Award

The Alpha-1 Foundation is accepting applications for a new research grant, the Gordon L. Snider Scholar Award.

The award is named after Gordon L. Snider, MD, one of the most influential researchers in Alpha-1. Snider not only made seminal scientific contributions  read more…

Alpha-1 researcher Ron Crystal to speak on ‘Smoking Gun of COPD’ at ATS Conference in May

Alpha-1 researcher Ron Crystal, MD, will present the latest findings from his lab May 18 at the American Thoracic Society 2014 International Conference in San Diego.

Crystal’s presentation, “Airway Basal Cells: The Smoking Gun of COPD,” will describe a novel perspective of  read more…

AlphaNet health management launches AlphaNet Canada

CORAL GABLES, Fla. — AlphaNet, Inc., a not-for-profit organization founded to improve the health of individuals with Alpha-1 Antitrypsin Deficiency (Alpha-1), on Monday announced the launch of AlphaNet Canada in conjunction with the Prolastin Direct Canada Program, sponsored by Grifols  read more…

Blood test to detect early
lung cancer getting closer

One of these days there could well be a simple blood test that can help diagnose and track cancers. We aren’t there yet, but a burst of research in this area shows we are getting a lot closer.

In the latest  read more…

NORD to honor Alpha-1 Foundation president with lifetime achievement award

Alpha-1 Foundation President and co-founder John Walsh will be honored with a lifetime achievement award by the National Organization for Rare Disorders (NORD) next month at its “Portraits of Courage” celebration in Washington, DC.

Walsh is the first recipient of the lifetime  read more…

Great twosome: Jacksonville Alpha-1 Education Day, then Friends for a Cure golf tourney

Alpha-1 Education Day, coming up Saturday, April 12 in Jacksonville, FL, will focus on the family — even more than usual.

The highlight will be a joint talk by Jacksonville-area resident Richard Johnson and his niece, genetic counselor Brittany Schubert.

Together, they  read more…

After smoking bans, children’s health showed quick improvement, study says

The number of premature births and children’s hospital visits for asthma dropped significantly in parts of the United States, Canada, and Europe barely a year after they enacted smoking bans, researchers reported in The Lancet March 28.

The new analysis combined the results of  read more…

Kamada enrolling participants in study of Alpha-1 to treat transplant-related disease

Kamada biotherapeutics company on Thursday announced a U.S.-based study with Glassia, its Alpha-1 therapy, to treat graft-versus-host disease (GVHD).

The Phase 1/2 study, now enrolling participants, will be conducted in cooperation with Baxter International at the Fred Hutchinson Cancer Research Center in Seattle,  read more…

It’s not too late to get health insurance coverage

If you didn’t get insurance coverage by the health law’s March 31 enrollment deadline, a few routes remain open.

Millions may be eligible for a second chance to sign up for subsidized insurance this year. And people who get coverage after the deadline  read more…

Run Happy team shines despite dark skies, raising over $4,000 for Alpha-1 in Philly run

On Sunday, it seemed love could conquer all — at least, it would not be put off by dark and stormy skies.

After training for months, Rachel Koval braved the downpour March 30 to run 13.1 miles in the inaugural Philadelphia  read more…

What happens next on
the health law?

The March 31 deadline for open enrollment to buy your own health insurance doesn’t mean debate over the health law will take a hiatus. After more than four years of strident rhetoric, evidence about how the law is actually working  read more…

Deadline May 31 to apply for grant co-funded by CHEST, Alpha-1 foundations

For the eighth year, the CHEST Foundation and Alpha-1 Foundation are co-sponsoring a one-year clinical research grant in chronic obstructive pulmonary disease (COPD) and Alpha-1 Antitrypsin Deficiency.

Research projects with a focus on Alpha-1 are encouraged.

The deadline to apply for the $25,000 award  read more…

The numbers are in: 30th anniversary of law was record-breaking year for orphan drugs

The Orphan Drug Act’s 30th anniversary was celebrated last year — it was signed into law on Jan. 4, 1983 — and now, another reason for supporters to celebrate: It was a record-breaking year for orphan drugs.

In 2013, the Food and Drug  read more…