News Archive

Plants used to study ways of delivering drugs for pulmonary hypertension

University of Florida researchers are using the leaves of plants to study new ways to deliver drugs that treat pulmonary hypertension, a disease with few treatment options, according to a study published online in the September issue of the journal  read more…

Medicare open enrollment continues till Dec. 7: what you need to know and where to get help

We are currently in the midst of the open enrollment period for Medicare prescription drug and Medicare Advantage plans. Enrollment began Oct. 15 and ends Dec. 7, 2014, for coverage beginning Jan. 1, 2015.

There are some critical changes taking place  read more…

FDA approves two drugs to treat idiopathic pulmonary fibrosis

The Food and Drug Administration last week approved nintedanib (Ofev) and pirfenidone (Esbriet) for treating idiopathic pulmonary fibrosis.

Both drugs were approved on the basis of trial data showing that they slowed the decline in forced vital capacity compared with placebo.

Patients with impaired hepatic  read more…

Researchers meet donors at Foundation’s Donor Recognition Dinner

Karina Serban, MD, of Indiana University, was presented with the first Gordon L. Snider Scholar award at the Alpha-1 Foundation’s Donor Recognition Dinner Friday night.

Karina Serban, MD, the inaugural recipient of the Gordon L. Snider Young Scholar Award with  read more…

‘We have lost a dear friend': Prominent Alpha-1 researcher Maurizio Luisetti passes away

Prominent Alpha-1 researcher Maurizio Luisetti, MD, of Pavia, Italy, passed away on Monday, Oct. 20, after a brief illness. He was 60 years old.

Maurizio Luisetti

“We have lost a dear friend and pioneer in Alpha-1 research,” said Alpha-1 Foundation President  read more…

Feds kick off effort to help insurance marketplace enrollees stay covered

The Centers for Medicare & Medicaid Services (CMS), in an effort to make it as easy as possible for current health insurance marketplace enrollees to renew their coverage for 2015, is encouraging consumers to come back at the start of  read more…

Christopher Sardzinski, of Massachusetts, passes away

Christopher Sardzinski, of Bedford, MA, passed away on Oct. 7 from Alpha-1 related illness.

A graduate of Shawsheen Valley Technical High School in Billerica, Christopher liked four-wheeling and working on his Jeep, photography, videography, and striper fishing. He was a member of the Frank  read more…

Plasma Protein Therapeutics Association issues statement on safety of plasma products against Ebola virus

The Plasma Protein Therapeutics Association (PPTA) on Monday issued a statement addressing concerns about the Ebola virus outbreak and whether it has the potential to affect plasma products in the U.S.

“PPTA understands that people who rely on plasma protein therapies may  read more…

Smoking related to 14 million ailments in U.S. adults, new study finds

Cigarette smoking accounts for approximately 14 million major medical conditions that plague the lives of U.S. adults, according to a new government report.

“For each annual death, there are 15 to 20 people living with major disease caused by smoking,” said  read more…

Seniors with COPD do better using medication combination, study finds

Which medications work best for older adults with chronic obstructive pulmonary disease?

Doctors aren’t entirely sure: Despite the fact that COPD is the third-leading cause of death, there is scant research on the comparative effectiveness of treatment options in  read more…

Two-month-old girl with Alpha-1 receives smallest liver-kidney transplant on record

Aspen Erickson was running out of time.

At 2 months old, the girl was diagnosed with Alpha-1 Antitrypsin Deficiency, an inherited condition that can cause lung or liver disease. Instead of celebrating milestone moments with their baby, Aspen’s parents watched as their  read more…

18 grant recipients present research at Foundation’s 2014 Investigators’ Meeting Oct. 17

Foundation Scientific Director Adam Wanner, MD

Eighteen recipients of Alpha-1 Foundation research grants met this week at the third Investigators’ Meeting Scientific Program.

The Foundation sponsors the Investigators’ Meeting every two years to encourage researchers whose work the Foundation has funded  read more…

Judy Rose, former AlphaNet coordinator, remembered lovingly by family and friends

Judy Rose

Judy Burdett Rose, a former AlphaNet coordinator, passed away on Sept. 29 of complications from Alpha-1. She was 61.

Born in Hood River, Oregon, Rose spent her early years on a dairy farm in Trout Lake, Washington. Her father’s  read more…

Foundation-funded study recruiting participants who use supplemental oxygen

Do you use supplemental oxygen? Are you using your oxygen less than the ideal amount of time?

If so, you may be eligible to participate in a research study funded by the Alpha-1 Foundation.

A research team, led by Kristen Holm, PhD,  read more…

Lung cancer can lie hidden for 20 years, scientists find

Lung cancer can lie dormant for more than 20 years before turning deadly, helping explain why a disease that kills more than 1.5 million people a year worldwide is so persistent and difficult to treat, scientists said on Thursday.

Two papers  read more…

Alpha-1 Foundation President John Walsh to speak at Alpha-1 Patient Meeting in Ireland Oct. 24

Alpha-1 Foundation President John Walsh will be the special guest speaker at the Alpha One Foundation Ireland‘s annual Alpha-1 Patient Meeting on Oct. 24 in Dublin, Ireland.

The U.S. Foundation will mark its 20th anniversary in 2015, and Walsh will  read more…

Arrowhead to present data on hepatitis B, Alpha-1 drugs at AASLD liver meeting Nov. 7-11

Arrowhead biopharmaceutical company, which develops targeted RNAi therapeutics, on Thursday announced it will present data from the ongoing Phase 2a study of ARC-520, its RNAi therapeutic candidate for the treatment of chronic hepatitis B (HBV) infection in a poster session at the  read more…

2015 Medicare Part B premiums, deductibles to remain the same as last two years

Secretary of Health and Human Services Sylvia Burwell announced Thursday that next year’s standard Medicare Part B monthly premium and deductible will remain the same as the last two years. Medicare Part B covers physicians’ services, outpatient hospital services, certain  read more…

Federal officials unveil streamlined healthcare marketplace website before enrollment Nov. 15

Consumers using the federal healthcare.gov website when open enrollment begins next month should expect a faster website with a shorter application form and features making it easier to use on mobile devices, Obama administration officials said Wednesday.

In a briefing with  read more…

Alpha-1 specialist leads new Rare Lung Diseases consortium created through NIH NCATS award

Bruce Trapnell, MD

Pulmonary specialist Bruce Trapnell, MD, director of the Alpha-1 Foundation’s Clinical Resource Center at the Cincinnati Children’s Hospital Medical Center, along with physician researchers at 22 consortia, will collaborate with representatives of 98 patient advocacy groups to  read more…