News Archive

Bettina Irvine, Alpha-1 lung transplant advocate, former Association Chair, dies

Bettina Irvine, for many years an advocate for the Alpha-1 community and former Chair of the Alpha-1 Association, died Saturday evening at New York-Presbyterian/Columbia University Medical Center in New York City. The wife of Ken Irvine, Vice-Chair of the Alpha-1  read more…

European Respiratory Society to honor longtime UK Alpha-1 researcher Robert Stockley

The European Respiratory Society will honor Robert Stockley, MD, with its Presidential Award at the 2014 ERS International Congress in Munich, Germany, Sept. 6-10.

Stockley, professor of medicine at the UK’s University Hospital Birmingham and director of the Lung Immunobiochemical Research Group,  read more…

As public debate on e-cigarettes continues, World Health Organization urges stronger regulation

The World Health Organization joined the American Heart Association in issuing a statement on electronic cigarettes.

In a report released Tuesday, the WHO called for some of the toughest measures yet proposed for the increasingly popular devices, saying governments should ban the  read more…

Adults need vaccines too — especially those with COPD and other chronic lung disease

August is National Immunization Awareness Month, and we’re in the middle of “Not Just For Kids” week, Aug. 24-30 — about dispelling the myth that vaccines are primarily for children.

Research shows adults are in need of this friendly reminder: Vaccines  read more…

Alpha-1 Global launches website,
linking Alphas worldwide

Today marks an exciting milestone for the Alpha-1 community worldwide: The Alpha-1 Global website, alpha-1global.org, is up and running.

The site provides a platform for Alphas to communicate and collaborate — a central network for exchange of news, information and ideas  read more…

ATS co-sponsors free lung transplant seminar Sept. 13 at Duke University

The American Thoracic Society (ATS), the Lung Transplant Foundation (LTF) and the Duke Department of Medicine in Durham, NC, are holding a free patient-education seminar on lung transplantation Saturday, Sept. 13.

The event is in conjunction with ATS’ Lung Transplant  read more…

Sylvia Moore, former Alpha-1 Association Board member, dies at age 57

Sylvia Moore, of Noblesville, IN, died Aug. 13 at St. Vincent Hospice in Indianapolis. She was 57.

Moore, a former member of the Alpha-1 Association Board of Directors, had Alpha-1 and received a double lung transplant on April 29, 2004.  read more…

From Curt Schilling to Heart Association, heavy-hitters take a stand on dangers of tobacco use

Some heavy-hitters are stepping up to the plate in the fight against tobacco use and its dangers, in every form — starting with Boston Red Sox star pitcher Curt Schilling.

Schilling acknowledged 17 years ago he had to quit  read more…

FDA approves new maintenance asthma treatment Arnuity Ellipta

The Food and Drug Administration has approved fluticasone furoate inhalation powder, also known as Arnuity Ellipta, as maintenance treatment for asthma in patients aged 12 years and older.

The FDA approved two doses to be administered once daily via maker GlaxoSmithKline’s dry  read more…

At age 59, Alpha Kurt Gamlin prepares to compete in his fourth Ironman

Although Kurt Gamlin is a man of God, he is also a man of science.

“Before going into the ministry I received my college degree in chemistry,” says Gamlin, 59, a Methodist minister who lives in the Chicago suburb of Wheaton,  read more…

Louisiana Alpha Pete Laughlin tells about exercising despite his age and lung disease

Pete Laughlin, of Bossier City, LA, tells his own story of how he reversed his rapidly-falling pulmonary function test scores with a gradual but dogged increase in exercise:

After finishing the Shreveport annual Firecracker 5K (3.1 mile) run in 50 minutes  read more…

Florida police officer carries Alpha flag
on climb up Mount Rainier

Dorothea “Dee” Meisner is a police officer in Cocoa, Florida. At age 55, she’s been working in law enforcement for 20 years. Till very recently she was a street cop, patrolling her city beat alone in a squad car.

Meisner has  read more…

Despite some concerns, FDA panel approves mist version of COPD drug Spiriva

A mist formulation of a drug to treat chronic obstructive pulmonary disease (COPD) should be approved, a Food and Drug Administration panel agreed, with concerns about its safety described as “niggling.”

At a meeting on Thursday, the 13-member Pulmonary-Allergy  read more…

Final-stage tests begin for injectable drug to treat severe asthma

AstraZeneca said on Thursday it was starting final-stage Phase III clinical trials for its experimental drug tralokinumab as a treatment for severe asthma.

The drug, which showed promising results in mid-stage trials in May, was among those highlighted by  read more…

Heleen Groen, of Amsterdam, tells about her long, life-threatening route to treatment

Heleen Groen, 40, of Amsterdam, Netherlands, is an Alpha who has severe necrotizing panniculitis, a painful skin infection often accompanied by a rash, inflammation and skin ulcers.

She shares her experience of growing up with Alpha-1 and the long  read more…

Hospitals seek to help consumers with Obamacare premiums

Low-income consumers struggling to pay their premiums may soon be able to get help from their local hospital or United Way. 

Some hospitals in New York, Florida and Wisconsin are exploring ways to help individuals and families pay their  read more…

FDA hearing considers safety concerns in mist version of COPD drug Spiriva

Safety is the main issue as Food and Drug Administration advisory panel considers the mist version of a drug for chronic obstructive pulmonary disease (COPD).

A dry powder version of tiotropium bromide, whose band name is Spiriva, is indicated to  read more…

Who gets first dibs on transplanted liver? Sept. 16 hearing to consider rule change

More than 12,000 Americans are waiting for a liver transplant because their own is failing, thanks to conditions such as hepatitis, cancer or cirrhosis. But only about 6,000 livers are donated each year. So, each year, hundreds of  read more…

FDA approves XVIVO lung preservation system, potentially boosting transplants

Federal health regulators have approved a device that can preserve donated lungs outside the body for possible transplantation into critically ill patients.

The Food and Drug Administration said Tuesday that the approval of the XVIVO  read more…

After Alpha-1, Wegener’s setbacks, Jessica Davis decides this is ‘my year to run’

Jessica Davis is an Alpha who also has granulomatosis with polyangiitis, also known as GPA or Wegener’s granulomatosis. GPA is a rare disease in which blood vessels and other tissues become inflamed. Although the disease can involve any organ system, GPA  read more…