News Archive

Florida COPD Coalition holding free COPD workshops for healthcare providers, patients Nov. 1

The Florida COPD Coalition, COPD Foundation and Alpha-1 Foundation are co-sponsoring a free COPD Community Education Workshop in Fort Myers, FL on Saturday, Nov. 1.

The morning session, 8 a.m.-12:30 p.m., is for healthcare practitioners. It will cover the topics COPD Management  read more…

Music pioneer Phil Everly, who died of COPD, to be honored at tribute concert Oct. 25

The Rock and Roll Hall of Fame will pay tribute to music pioneer Phil Everly, who passed away in January of chronic obstructive pulmonary disease (COPD), at the 19th annual Music Masters concert on Saturday, Oct. 25, at 7:30 p.m.  read more…

Clinical trials to begin for stem cell-based lung cancer vaccine

Asterias Biotherapeutics, a subsidiary of BioTime, announced that it partnered with Cancer Research UK (CRUK) and Cancer Research Technology (CRT) to conduct a clinical trial of Asterias’ immunotherapy cancer vaccine, AST-VAC2, for non-small cell lung cancer.

AST-VAC2 is an  read more…

U.S. moves to curb threat of antibiotic resistance; experts critical agriculture drug use not addressed

The Obama administration on Thursday announced measures to tackle the growing threat of antibiotic resistance, outlining a national strategy that includes incentives for the development of new drugs, tighter stewardship of existing ones, and improvements  read more…

We must overhaul healthcare to include end-of-life discussions, bipartisan panel report says

It is time for conversations about death to become a part of life.

That is one of the themes of a 500-page report, titled “Dying In America,” released Wednesday by the Institute of Medicine (IOM).

The report suggests that the first  read more…

UNOS tries to find ‘what makes sense,’ fix disparities in access to donated livers

Geographic disparities in access to donated livers is a big problem in the U.S. and a solution is urgently needed to accompany awareness efforts, said experts from the United Network for Organ Sharing (UNOS) during a public forum Monday in  read more…

What you should know about flu shots, Enterovirus D68

Robert Sandhaus, MD, PhD, Foundation clinical director and medical director of AlphaNet, provides this advice on receiving flu shots this season, and adds some things you should know about the Enterovirus D68 virus, which has been reported recently in  read more…

Genetic Alliance awarded $3 million to support Newborn Screening Clearinghouse

Genetic Alliance on Wednesday announced a four-year cooperative agreement to maintain and build on the nation’s Newborn Screening Clearinghouse. The program is funded by the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health  read more…

Under clear skies, Jonathan Maidment reaches end of Appalachian Trail trek for Alpha-1 awareness, raises $30,000

Maidment reached the summit of Mount Katahdin at noon on Sept. 17.

Six months and 21 days after starting on the Appalachian Trail from Springer Mountain, Georgia on Feb. 27, Jonathan Maidment reached its end: the summit of Mount Katahdin, Maine.

Despite  read more…

Two-drug combination best for treating COPD, new study finds

A combination drug therapy aimed at opening the airways and reducing inflammation appears to be the best treatment for older adults with chronic obstructive pulmonary disease (COPD), especially those with asthma, a new study finds.

COPD patients  read more…

In position paper, Forum of International Respiratory Societies urges more restriction, closer study of e-cigarettes

A group of researchers has published a position statement on electronic cigarettes on behalf of the Forum of International Respiratory Societies (FIRS), urging greater restriction until the smokeless tobacco devices are studied more closely.

The article was published Sept. 15  read more…

Number of uninsured plummets; thousands may lose coverage for failing to show eligibility

Federal researchers reported on Tuesday that the number of Americans without health insurance had declined substantially in the first quarter of this year, the first federal measure of the number of uninsured Americans  read more…

Mourning loss of 3 siblings to lung disease, Irish Alpha looks to new, hopeful chapter: his first grandchild

Michael McNamee is looking forward to meeting the newest member of his family.

“My first grandchild is due in the beginning of November,” he says.

His daughter, Catriona, lives in New York so he won’t get to  read more…

Join call-in meeting Wednesday to plan Step Forward for Alpha-1 walk in West Palm Beach

Building Friends For A Cure coordinator Angela McBride and event organizer Lisa Kosak are holding a phone meeting this Wednesday, Sept. 17, on the upcoming Step Forward For Alpha-1 awareness walk in West Palm Beach.

Alpha friends and families are  read more…

‘Alpha-1-to-One’ magazine is in the mail

The fall issue of Alpha-1-to-One magazine is out, and will be in your mailbox soon.

Our first issue since the merger of the Alpha-1 Association into the Alpha-1 Foundation, the editor’s note talks about the Foundation’s expanded mission, and there is  read more…

Foundation urges support of rule allowing generic drug makers to initiate safety updates

The Alpha-1 Foundation joined more than 30 healthcare and patient advocacy organizations this week in supporting the Food and Drug Administration’s proposed regulation revisions that would allow generic drug manufacturers to initiate safety updates to their products’ labeling.

The letter, sent Sept. 9 to U.S.  read more…

COPD Foundation part of new Governance Board promoting COPD Assessment Test

GlaxoSmithKline (GSK), the Global Initiative for Chronic Obstructive Lung Disease (GOLD) and the COPD Foundation on Monday announced the formation of a new Governance Board to help promote and encourage further uptake of the “COPD Assessment Test,”  read more…

Rare strain of common virus causes respiratory illness spike among children in 12 states

A virus that causes severe respiratory illness has sickened dozens of children in Illinois and Missouri and may be fueling outbreaks in at least 10 other states, the Centers for Disease Control and Prevention said  read more…

Alpha-1 Canada educational telecalls Sept. 17 and 30 to feature Alpha-1 experts Chapman and Teckman

As summer ends, Alpha-1 Canada’s educational events are returning: In September, the organization will hold two telecalls featuring world-renowned medical experts on Alpha-1.

Ken Chapman, MD

Jeff Teckman, MD

On Sept. 17 at 7 p.m. EDT, a telecall will feature Ken Chapman, MD, speaking  read more…

FDA has already approved 27 novel drugs, matching total of 2013

For those who like to track the progress at the Food and Drug Administration, here is a significant and up-to-date metric.

So far this year, the agency has approved 27 novel new medicines, a tally that includes biologics and  read more…