News Archive

On Giving Tuesday, Dec. 2, donate to help us fight Alpha-1

After Thanksgiving, after Black Friday and Cyber Monday, be part of the movement:
DONATE on Giving Tuesday to the Alpha-1 Foundation.

#GivingTuesday is a national movement dedicated to giving back.

On Tuesday, December 2, 2014, people around the nation will  read more…

Lucky 13: Alpha celebrates transplant anniversary in midst of Awareness Month

Deborah Labud was 36 years old, living in Virginia and working as a waitress when she began having trouble breathing.

Debbie Labud wearing her gold and bronze medals at July 2014 Transplant Games.

The shortness of breath hit when she  read more…

Scotland’s health secretary commits to improving care for people with Alpha-1

In a seminar at the Scottish Parliament last week, the Alpha-1 Alliance of the UK moved one step closer to achieving its goal of improving health services for Alpha-1 patients in Scotland – with a personal commitment to improve care  read more…

On Thanksgiving, create a family ‘health portrait’ as part of Family Health History Day

Thanksgiving may be the perfect time to discuss Alpha-1 with your family and create a family “health portrait”: An explanation of how the genetic condition runs in the family could lead to a family member deciding to get tested.

Since 2004, the U.S.  read more…

Proposal would shift insurance enrollees to lower-cost plans

People who bought Affordable Care Act health plans for 2014 but who don’t go back to shop again for 2015 will automatically keep the plan they first chose, even if its price goes way up.

read more…

In Winter issue of ‘Alpha-1-To-One,’ liver study subjects tell why they volunteer

The Winter issue of Alpha-1-To-One is arriving in mailboxes now, and the cover story features two Alphas talking about why they joined the vital Adult Liver Study that is enrolling right now.

Other features include:

Karina Serban, MD, of Indiana University received  read more…

Foundation, AANP offer free credit course on Alpha-1 for nurse practitioners

The Alpha-1 Foundation has partnered with the American Association of Nurse Practitioners (AANP) to offer an credited online course for nurse practitioners on Alpha-1 Antitrypsin Deficiency.

James Stoller, MD, MS

The program, “Alpha-1 Antitrypsin Deficiency: A Review for the Nurse Practitioner,”  read more…

Test gauges danger of rejection for children needing organ transplants

This is a test: Write down the first thing that comes to your mind at the mention the word “transplant.”

I’ll bet no one reading this column thought about pediatric liver or pediatric small- bowel transplants. But these lifesaving procedures are  read more…

President of Alpha-1, COPD Foundations joins NHLBI’s Kiley in World COPD Day radio interview

John Walsh

On Nov. 19, patient advocate groups, people with chronic obstructive pulmonary disease (COPD), caregivers and the healthcare community marked World COPD Day, which falls in the middle of Alpha-1 and COPD Awareness Month.

Among the events aimed at raising  read more…

Big changes for 2015 workplace plans: Watch out for 6 possible pitfalls

You don’t get a pass this year on big health insurance decisions because you’re not shopping in an Affordable Care Act marketplace. Employer medical plans — where most working-age folks get coverage — are changing too.

Rising costs, a looming tax  read more…

Venture capital firm to pay $3.3 billion
to Cystic Fibrosis Foundation, says NYT

A venture capital firm will pay the Cystic Fibrosis Foundation $3.3 billion for future rights to a drug developed for cystic fibrosis that treats 4 percent of people with a form of the disease. The Cystic Fibrosis Foundation will announce  read more…

World COPD Day: European lung newsletter interviews Foundation CEO

November is both Alpha-1 Awareness Month and COPD Awareness Month, and Nov. 19 is World COPD Day.

As if to mark the day, the European Lung Foundation has just published its newsletter with an interview of John Walsh, president of both  read more…

Arrowhead files request to begin trial on Alpha-1 liver drug in Australia

Arrowhead, a biopharmaceutical company developing targeted RNAi therapeutics, on Tuesday said that it has filed an application in Australia for approval to begin a Phase 1 clinical trial of its RNAi-based therapeutic candidate, ARC-AAT, for the treatment of liver disease associated  read more…

Alpha Jessica Davis tells of her ‘Turning Point’ in WebMD blog

Diagnosed with Alpha-1 at age 25, Jessica Davis was overwhelmed.

In addition to this condition with no cure, Davis had many complications, including Wegener’s and weight gain caused by her medication.

Davis, of Plymouth, MA, whose story was posted on the Alpha-1 Foundation website in  read more…

Q&A: What’s covered, what’s not under Affordable Care Act

As the federal government and states launch a second round of enrollment under the healthcare law, consumers should be aware of what’s covered and what’s not when buying health coverage through insurance marketplaces. Plans cover essential health benefits, pre-existing  read more…

From Alpha to Zumba: Step Forward walk raises over $35,000 for research and programs

Lisa Kosak and Gordon Cadwgan cut the ribbon to start the walk.

The 6th annual Step Forward for Alpha-1 walk on Saturday, Nov. 15, at Carlin Park in Jupiter, FL, raised more than $35,000 for the Alpha-1 Foundation’s research  read more…

‘This is for every Alpha out there,’ Virginia woman says of Awareness Month proclamation

Sherry Gochenour, of Rockingham County, VA, was once a runner.

Diagnosed with Alpha-1 three years ago, “now I can’t even walk to the mailbox,” she said in an interview broadcast Thursday on WHSV TV-3.

In the interview, Gochenour and her husband spoke about the experience  read more…

A Q&A on federal health insurance enrollment, opening Nov. 15

Health insurers are preparing for the reopening of the health law’s marketplaces on Nov. 15. In most states, consumers access the exchange by going to the federal site at HealthCare.gov, although some states run their own exchanges with distinct websites. Here  read more…

Kentucky, leading U.S. in lung cancer and smoking, joins with alliance to find solutions

Kentucky leads the nation in lung cancer cases and deaths, and now Gov. Steve Beshear says the state “must step up to be a leader in finding solutions” to the deadly scourge.

The universities of Kentucky and Louisville and the national  read more…

University of Wisconsin wins $70 million grant to study urban epidemic of asthma

The University of Wisconsin School of Medicine and Public Health has won a $70 million grant over seven years for its continuing work on a project called the Inner-City Asthma Consortium —the largest grant in UW’s history.

The work, funded by  read more…