News Archive

Open enrollment countdown: How to prepare for insurance signup

Mark your calendar: On Nov. 15, millions of Americans will return to to find a new health insurance plan or re-enroll in their current plan.

Here are 3 things you can do right now to get ready:

Download this Marketplace checklist  read more…

Study: Immunotherapy promising in lung cancer survival time

Treatment of a common form of advanced lung cancer with the experimental immunotherapy nivolumab led to a one-year survival rate of 41 percent in a midstage clinical trial, according to data to be presented at a medical meeting.

While the study,  read more…

Portable ventilator cuts COPD symptoms, according to findings presented at CHEST meeting

Assessment scores for chronic obstructive pulmonary disease (COPD) improved by more than 50 percent during treatment with a noninvasive open ventilation system (NIOV), results of a small prospective trial showed.

The mean score on the modified British Medical Research Council (mMRC)  read more…

Lung-MAP clinical trial treats lung cancer based on patients’ genetic markers

A new type of clinical trial for lung cancer patients getting under way at hospitals in the San Francisco Bay Area and around the country may change the way drugs are tested in the future.

That’s a pretty bold expectation, but  read more…

Once-daily drug combo outperforms
twice-daily for COPD, study shows

In two studies of patients with moderate to severe chronic obstructive pulmonary disease (COPD), patients receiving the once-daily combination of umeclidinium and vilanterol (Anoro Ellipta) scored higher on lung function tests than those receiving the twice-daily combination of fluticasone and  read more…

Alpha-1 community reflects on humor
and compassion of Terry Young

Terry Young, the first AlphaNet Coordinator after the organization’s founding in 1995 and its General Manager, passed away Thursday, Oct. 23, at age 64. Coordinators and others in the Alpha-1 community reflected on Young’s life, and how he affected theirs:

Terry Young was featured on  read more…

Terry Young, who ‘built the culture
of AlphaNet,’ passes away at age 64

Terry Young, the first AlphaNet Coordinator after the organization’s founding in 1995, who “built the culture of AlphaNet” as its General Manager, passed away early Thursday, Oct. 23, after a long illness. He was 64.

Terry Young

Young, who received a  read more…

Plants used to study ways of delivering drugs for pulmonary hypertension

University of Florida researchers are using the leaves of plants to study new ways to deliver drugs that treat pulmonary hypertension, a disease with few treatment options, according to a study published online in the September issue of the journal  read more…

Medicare open enrollment continues till Dec. 7: what you need to know and where to get help

We are currently in the midst of the open enrollment period for Medicare prescription drug and Medicare Advantage plans. Enrollment began Oct. 15 and ends Dec. 7, 2014, for coverage beginning Jan. 1, 2015.

There are some critical changes taking place  read more…

FDA approves two drugs to treat idiopathic pulmonary fibrosis

The Food and Drug Administration last week approved nintedanib (Ofev) and pirfenidone (Esbriet) for treating idiopathic pulmonary fibrosis.

Both drugs were approved on the basis of trial data showing that they slowed the decline in forced vital capacity compared with placebo.

Patients with impaired hepatic  read more…

Researchers meet donors at Foundation’s Donor Recognition Dinner

Karina Serban, MD, of Indiana University, was presented with the first Gordon L. Snider Scholar award at the Alpha-1 Foundation’s Donor Recognition Dinner Friday night.

Karina Serban, MD, the inaugural recipient of the Gordon L. Snider Young Scholar Award with  read more…

‘We have lost a dear friend': Prominent Alpha-1 researcher Maurizio Luisetti passes away

Prominent Alpha-1 researcher Maurizio Luisetti, MD, of Pavia, Italy, passed away on Monday, Oct. 20, after a brief illness. He was 61 years old.

Maurizio Luisetti

“We have lost a dear friend and pioneer in Alpha-1 research,” said Alpha-1 Foundation President  read more…

Feds kick off effort to help insurance marketplace enrollees stay covered

The Centers for Medicare & Medicaid Services (CMS), in an effort to make it as easy as possible for current health insurance marketplace enrollees to renew their coverage for 2015, is encouraging consumers to come back at the start of  read more…

Christopher Sardzinski, of Massachusetts, passes away

Christopher Sardzinski, of Bedford, MA, passed away on Oct. 7 from Alpha-1 related illness.

A graduate of Shawsheen Valley Technical High School in Billerica, Christopher liked four-wheeling and working on his Jeep, photography, videography, and striper fishing. He was a member of the Frank  read more…

Plasma Protein Therapeutics Association issues statement on safety of plasma products against Ebola virus

The Plasma Protein Therapeutics Association (PPTA) on Monday issued a statement addressing concerns about the Ebola virus outbreak and whether it has the potential to affect plasma products in the U.S.

“PPTA understands that people who rely on plasma protein therapies may  read more…

Smoking related to 14 million ailments in U.S. adults, new study finds

Cigarette smoking accounts for approximately 14 million major medical conditions that plague the lives of U.S. adults, according to a new government report.

“For each annual death, there are 15 to 20 people living with major disease caused by smoking,” said  read more…

Seniors with COPD do better using medication combination, study finds

Which medications work best for older adults with chronic obstructive pulmonary disease?

Doctors aren’t entirely sure: Despite the fact that COPD is the third-leading cause of death, there is scant research on the comparative effectiveness of treatment options in  read more…

Two-month-old girl with Alpha-1 receives smallest liver-kidney transplant on record

Aspen Erickson was running out of time.

At 2 months old, the girl was diagnosed with Alpha-1 Antitrypsin Deficiency, an inherited condition that can cause lung or liver disease. Instead of celebrating milestone moments with their baby, Aspen’s parents watched as their  read more…

18 grant recipients present research at Foundation’s 2014 Investigators’ Meeting Oct. 17

Foundation Scientific Director Adam Wanner, MD

Eighteen recipients of Alpha-1 Foundation research grants met this week at the third Investigators’ Meeting Scientific Program.

The Foundation sponsors the Investigators’ Meeting every two years to encourage researchers whose work the Foundation has funded  read more…

Judy Rose, former AlphaNet coordinator, remembered lovingly by family and friends

Judy Rose

Judy Burdett Rose, a former AlphaNet coordinator, passed away on Sept. 29 of complications from Alpha-1. She was 61.

Born in Hood River, Oregon, Rose spent her early years on a dairy farm in Trout Lake, Washington. Her father’s  read more…