News Archive

At age 59, with Alpha-1-related COPD,
Kurt Gamlin competes in the Ironman

Although Kurt Gamlin is a man of God, he is also a man of science.

“Before going into the ministry I received my college degree in chemistry,” says Gamlin, 59, a Methodist minister in the Chicago suburb of Wheaton, IL. “So  read more…

Louisiana Alpha Pete Laughlin tells about exercising despite his age and lung disease

Pete Laughlin, of Bossier City, LA, tells his own story of how he reversed his rapidly-falling pulmonary function test scores with a gradual but dogged increase in exercise:

After finishing the Shreveport annual Firecracker 5K (3.1 mile) run in 50 minutes  read more…

Florida police officer carries Alpha flag
on climb up Mount Rainier

Dorothea “Dee” Meisner is a police officer in Cocoa, Florida. At age 55, she’s been working in law enforcement for 20 years. Till very recently she was a street cop, patrolling her city beat alone in a squad car.

Meisner has  read more…

Despite some concerns, FDA panel approves mist version of COPD drug Spiriva

A mist formulation of a drug to treat chronic obstructive pulmonary disease (COPD) should be approved, a Food and Drug Administration panel agreed, with concerns about its safety described as “niggling.”

At a meeting on Thursday, the 13-member Pulmonary-Allergy  read more…

Final-stage tests begin for injectable drug to treat severe asthma

AstraZeneca said on Thursday it was starting final-stage Phase III clinical trials for its experimental drug tralokinumab as a treatment for severe asthma.

The drug, which showed promising results in mid-stage trials in May, was among those highlighted by  read more…

Heleen Groen, of Amsterdam, tells about her long, life-threatening route to treatment

Heleen Groen, 40, of Amsterdam, Netherlands, is an Alpha who has severe necrotizing panniculitis, a painful skin infection often accompanied by a rash, inflammation and skin ulcers.

She shares her experience of growing up with Alpha-1 and the long  read more…

Hospitals seek to help consumers with Obamacare premiums

Low-income consumers struggling to pay their premiums may soon be able to get help from their local hospital or United Way. 

Some hospitals in New York, Florida and Wisconsin are exploring ways to help individuals and families pay their  read more…

FDA hearing considers safety concerns in mist version of COPD drug Spiriva

Safety is the main issue as Food and Drug Administration advisory panel considers the mist version of a drug for chronic obstructive pulmonary disease (COPD).

A dry powder version of tiotropium bromide, whose band name is Spiriva, is indicated to  read more…

Who gets first dibs on transplanted liver? Sept. 16 hearing to consider rule change

More than 12,000 Americans are waiting for a liver transplant because their own is failing, thanks to conditions such as hepatitis, cancer or cirrhosis. But only about 6,000 livers are donated each year. So, each year, hundreds of  read more…

FDA approves XVIVO lung preservation system, potentially boosting transplants

Federal health regulators have approved a device that can preserve donated lungs outside the body for possible transplantation into critically ill patients.

The Food and Drug Administration said Tuesday that the approval of the XVIVO  read more…

After Alpha-1, Wegener’s setbacks, Jessica Davis decides this is ‘my year to run’

Jessica Davis is an Alpha who also has granulomatosis with polyangiitis, also known as GPA or Wegener’s granulomatosis. GPA is a rare disease in which blood vessels and other tissues become inflamed. Although the disease can involve any organ system, GPA  read more…

Alpha-1 patient joins 21st Century Cures panel Aug. 19 in Lutz, Florida

Samantha Lindsay, MD, found out she had Alpha-1 Antitrypsin Deficiency when she was well on her way to becoming a doctor.

Her husband, Ralph, says “there was a lot of trying to analyze — what do we do? How do  read more…

Biomarker research may lead to less invasive way to diagnose lung cancer

As he examined a nanochip under a microscope, the scientist explained that with more research, doctors could better identify people at the greatest risk of lung cancer.

“Each cancer cell secretes a material that has an address,”  read more…

Doctors surprised to find Alpha-1 in siblings of mixed-race family

Doctors have been surprised to find Alpha-1 in Kathleen Griffin’s family.

Griffin is African-American — although her family history, like that of many, proves it’s much more complicated.

When her sister, Mary Rogers, was diagnosed with Alpha-1 after receiving a liver transplant  read more…

With fourth 4-star rating, Alpha-1 Foundation in Charity Navigator’s top 7%

For the fourth consecutive year, the Alpha-1 Foundation has received a four-star rating, the highest available, from Charity Navigator, the country’s largest and most-utilized independent charity evaluator.

“The Foundation is honored and pleased to receive another outstanding rating from  read more…

FDA approves once-daily inhaler drug to treat COPD

The Food and Drug Administration said on Thursday it has approved the long-acting beta-agonist Striverdi Respimat, also known as olodaterol, for long-term, once-daily maintenance treatment of airflow obstruction in patients with chronic obstructive pulmonary disease (COPD), including chronic bronchitis and/or emphysema.

“The  read more…

Florida police officer plans to carry Alpha flag on Mount Rainier climb

Dorothea “Dee” Meisner is a police officer in Cocoa, Florida. At age 55, she’s been working in law enforcement for 20 years. Till very recently she was a street cop, patrolling her city beat alone in a squad car.

Meisner has  read more…

CDC: Annual COPD costs in U.S. expected to hit $49 billion by 2020

Medical costs for chronic obstructive pulmonary disease (COPD) in the U.S. are more than $32 billion each year, according to new research from the U.S. Centers for Disease Control and Prevention.

The yearly financial toll of COPD,  read more…

At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure

Mary Anne Ferguson comes from a family that is no stranger to longevity.

At 72, Ferguson was diagnosed with Alpha-1 and as she turns 96, she continues to enjoy life despite some obstacles.

In Pittsburgh, PA, she was first diagnosed with chronic  read more…

Celebrate 25 years with the Alpha Beaters support group at Alpha-1 walk/lunch in Denver on Aug. 10

In August, put your feet to work for a good cause: Join Alpha-1 Foundation Clinical Director Robert Sandhaus, MD, President and CEO John Walsh, and the Denver Alpha Beaters support group at this year’s Step Forward for Alpha-1 Walk in  read more…