News Archive

Ireland passes EU’s first tobacco plain-packaging law

Ireland on Thursday became the first European Union member state to pass a law introducing mandatory plain packaging for tobacco products, prompting the tobacco industry to threaten legal action.

Under the new rules all forms of branding, including logos  read more…

‘Hand in hand,’ community joins to raise awareness on Rare Disease Day, Feb. 28

Rare Disease Day, an international advocacy day to bring widespread recognition of rare diseases as a global health challenge, is celebrated on the last day of February every year. This year, its eighth, it’s being observed on Saturday, Feb. 28.

The  read more…

Early Obamacare tax filers won’t have to file amended return or pay more

People who have already filed their taxes using one of the erroneous health insurance forms sent by the federal government will not be required to file an amended return or owe additional taxes, the Treasury Department said Tuesday.

About 800,000 consumers  read more…

Smoking declines but lung screening guidelines the same, leaving many undiagnosed

More people may die from undiagnosed lung cancer because they don’t qualify for low-dose CT scans, according to a study by Mayo Clinic researchers. The researchers blame current screening guidelines that have remained the same despite the decline in  read more…

Obamacare to hold second enrollment period, March 15-April 30, to help people avoid tax penalty

The Obama administration will hold a second enrollment period for the federal insurance exchanges this year to give people a chance to avoid a new tax penalty for going without insurance.

The enrollment period will run from March 15 to April  read more…

TAP collaborator Arrowhead begins clinical trials on ARC-AAT to treat Alpha-1 liver disease

A groundbreaking trial of a potential treatment for Alpha-1-related liver disease has begun in Australia.

Arrowhead Research Corporation, a biopharmaceutical company developing targeted RNAi therapeutics, on Monday announced it has started dosing in a Phase 1 clinical trial of ARC-AAT, the  read more…

‘I had to keep going — that’s what he would have wanted’

Jonathan Maidment speaks about the joys and challenges of hiking the Appalachian Trail.

Five months after completing his 2,200-mile trek of the Appalachian Trail, in which he raised $30,000 for the Alpha-1 Foundation’s research programs, Alpha Jonathan Maidment spoke to  read more…

‘Med sync’ program aims to help patients manage multiple prescriptions

In order to help people manage their medications and adhere to their regimen, Pfizer, the American Pharmacists Association (APhA) and the National Community Pharmacists Association (NCPA) have collaborated to develop a medication synchronization program. Aimed at patients who regularly  read more…

Ohio House passes Alpha-1 Awareness Month bill; Alphas urged to contact Gov. Kasich, senators

Ann Dissinger and Jesse Strickland with Ohio Rep. Terry Johnson, MD, center.

The Ohio House votes unanimously to designate November Alpha-1 Awareness Month.

It was a chilly day in Columbus, Ohio, on Feb. 18, but in the House Chamber of  read more…

John and Fred Walsh to be honored at Celtic Connection on March 7

The number 7 is considered a symbol of togetherness, and a good omen: Seven colors of the rainbow. Seven virtues. Seven wonders of the world.

John Walsh prepares to present the Shillelagh in 2014 as Fred Walsh, back left, looks  read more…

Smoking’s health toll worse than previously thought, study shows

However bad you thought smoking was, it’s even worse.

A new study adds at least five diseases and 60,000 deaths a year to the toll taken by tobacco in the United States. Before the study, smoking was already blamed for nearly  read more…

UK bans smoking in cars with passengers under 18, joining some U.S. states

England has joined the ranks in fighting the dangers of secondhand smoke.

On Oct. 1, drivers in England will be banned from smoking in their cars if their passengers are under the age of 18. Offenders will be fined  read more…

Alpha-1 Foundation joins rare disease community in thanking outgoing FDA chief Margaret Hamburg, MD

Food and Drug Administration Commissioner Margaret Hamburg, MD, will be stepping down in late March after six years in a job she calls “the most rewarding of my career.”

FDA Commissioner Margaret Hamburg, MD

Hamburg, 59, was approved by the Senate in  read more…

Unsure what vaccines you need? CDC issues new adult vaccine schedule

The issue of vaccination has been at the top of the news cycle lately, but how many people are aware of what vaccinations they should be getting, and when?

The Feb. 6 issue of the Centers for Disease Control’s Morbidity and Mortality  read more…

Recovering after lung transplant, Kansas Alpha-1 activist Julie Swanson feels ‘truly blessed’

Julie Swanson got the call on Saturday morning in late January.

Julie Swanson

The next day, Jan. 25, she received a double-lung transplant after what her mother, Peggy Paulks, described as “18 long months” on the waiting list.

Swanson, of Olathe, Kansas,  read more…

‘Let It Breathe’ fundraiser in March celebrates memory of Alpha Michael Ratner

Ilysse and Josh Ratner were standing outside The Valley Hospital in Ridgewood, NJ, waiting for the valet to bring their car around when a gust of wind hit their backs.

“You feel this?” Josh asked his sister. “That’s dad  read more…

Alpha-1 liver disease: What therapeutic options are in the pipeline? You can help by joining studies

David Perlmutter, MD, a longtime Alpha-1 researcher, joined with University of Pittsburgh colleagues Andrew Chu, MD, and Kapil B. Chopra, MD, for a Medscape article this week discussing potential therapies for Alpha-1 liver disease.

David Perlmutter, MD

In 2010 they published a report showing that  read more…

Companies partner to develop new COPD drug

Theravance Biopharma and Mylan will partner on the development and, subject to FDA approval, commercialization of TD-4208, a new once-daily nebulized, long-acting muscarinic antagonist (LAMA) for chronic obstructive pulmonary disease (COPD) and other respiratory diseases.

COPD is the third leading cause of death  read more…

Lung cancer now kills more women than breast cancer in developed countries

For years, breast cancer has been the leading cause of cancer death among women in developed countries, but according to a new report on the incidence of cancer worldwide from the American Cancer Society, lung cancer now surpasses it.

A combination  read more…

FDA seeks faster patient access to experimental drugs

The Food and Drug Administration wants to dramatically simplify and speed up the application process for access to investigational drugs.

The agency Wednesday introduced new draft guidance that includes a new application form for physicians to apply for experimental drugs not yet  read more…