Helpful Websites

Online Journals and Magazines

Lots of helpful websites for Alphas, friends and family members

  1. Advance for Respiratory Care Practitioners
  2. Advance News magazines
  3. American College of Chest Physicians
  4. COPD Digest
  5. Journal of Clinical Investigation
  6. MEDLINEplus
  7. Medscape
  8. New England Journal of Medicine
  9. PubMed Central

Related Organizations

  1. American Association for Respiratory Disease
  2. American Association for the Study of Liver Disease
  3. American Society for Bioethics and Humanities
  4. American Liver Foundation
  5. American Lung Association
  6. American Medical Association
  7. American Thoracic Society
  8. American Thoracic Society Public Advisory Roundtable
  9. Canadian Liver Foundation
  10. Children’s Liver Disease Foundation
  11. COPD Foundation
  12. COPD-International
  13. Medical University of South Carolina Alpha-1 Research Program
  14. Mercy Medical Airlift National Patient Travel Center
  15. National Institutes of Health
  16. National Jewish Health
  17. National Society of Genetic Counselors
  18. Plasma Protein Therapeutic Association
  19. Pulmonary Education & Research Foundation
  20. Pulmonary Hypertension Association
  21. Save Babies Through Screening Foundation
  22. University of Florida Alpha-1 Research Program
  23. U.S. COPD Coalition
  24. U.S. National Library of Medicine

Transplant Information

  1. American Society of Transplantation
  2. LifeGift Organ Donation Center
  3. Organ Procurement and Transplantation Network
  4. Second Wind Transplant Association of St. Louis
  5. Transplant Living
  6. Transplant Buddies

Drug Databases

  1. Cardinal Health
  2. RxList – The Internet Drug Index

Industry Links

  1. Accredo Therapeutics
  2. Aralast
  3. Baxter BioTherapeutics
  4. Dohmen Life Science Services
  5. CSL Behring
  6. Coram Specialty Infusion Services
  7. Prolastin
  8. Grifols
  9. Zemaira

Some Alpha-1 Websites

  1. Associação Alfa1 de Portugal
  2. Alpha-1 Association of Australia
  3. Alpha-1 Austria
  4. Alpha-1 Awareness – UK
  5. Alpha-1 Brazil
  6. Alpha-1 Canada
  7. Alpha-1 Denmark
  8. Alpha Europe Federation
  9. Alpha-1 France
  10. Alpha-1 Germany
  11. Alpha-1 Italy
  12. Alpha-1 Kids
  13. AlphaNet
  14. Alpha-1 Netherlands
  15. Alpha-1 New Zealand
  16. Alpha-1 Spain
  17. Alpha-1 Sweden
  18. Alpha-1 UK Support Group
  19. Breathing Better Living Well
  20. COPD-ALERT
  21. COPD-Support, Inc
  22. CureCOPD.blogspot.com
  23. Deutsche Emphysemgruppe e.V.
  24. EFFORTS
  25. Fundación Alfa-1 de Puerto Rico
  26. Fundepoc – Argentina
  27. Livsreisen-Mandalay.blogspot.de
  28. MartimMargaca.blogspot.com
  29. Second Wind Lung Transplant Association
  30. Spider Spun

More information

  1. Air Charity Network
  2. Association for the Accreditation of Human Research Protection Programs
  3. Center for Genetic Research Ethics & Law – Case Western Reserve University
  4. Centerwatch
  5. Children Network
  6. ClinicalTrials
  7. Coalition for the Advancement of Medical Research
  8. NIH REPORTER Database
  9. Patient Notification System
  10. Rare Lung Disease Consortium
  11. Tox Town
  12. Virtual Training Systems

Scientific Organizations

  1. American Academy of Family Practitioners (AAFP)
  2. American Association of Respiratory and Critical Care (AARC)
  3. American College of Chest Physicians (ACCP)
  4. American Liver Foundation (ALF)
  5. American Lung Association (ALA)
  6. American Thoracic Society (ATS)
  7. Asthma and Allergy Foundation of America (AAFA)
  8. COPD Foundation
  9. National Emphysema Foundation
  10. National Society of Genetic Counselors
  11. World Health Organization (WHO)