Helpful Websites

Online Journals and Magazines

Lots of helpful websites for Alphas, friends and family members

  1. Advance for Respiratory Care Practitioners
  2. Advance News magazines
  3. American College of Chest Physicians
  4. COPD Digest
  5. Journal of Clinical Investigation
  6. MEDLINEplus
  7. Medscape
  8. New England Journal of Medicine
  9. PubMed Central

Related Organizations

  1. American Association for Respiratory Disease
  2. American Association for the Study of Liver Disease
  3. American Society for Bioethics and Humanities
  4. American Liver Foundation
  5. American Lung Association
  6. American Medical Association
  7. American Thoracic Society
  8. American Thoracic Society Public Advisory Roundtable
  9. Canadian Liver Foundation
  10. Children’s Liver Disease Foundation
  11. COPD Foundation
  12. COPD-International
  13. Medical University of South Carolina Alpha-1 Research Program
  14. Mercy Medical Airlift National Patient Travel Center
  15. National Institutes of Health
  16. National Jewish Health
  17. National Society of Genetic Counselors
  18. Plasma Protein Therapeutic Association
  19. Pulmonary Education & Research Foundation
  20. Pulmonary Hypertension Association
  21. Save Babies Through Screening Foundation
  22. University of Florida Alpha-1 Research Program
  23. U.S. COPD Coalition
  24. U.S. National Library of Medicine

Transplant Information

  1. American Society of Transplantation
  2. LifeGift Organ Donation Center
  3. Organ Procurement and Transplantation Network
  4. Second Wind Transplant Association of St. Louis
  5. Transplant Living
  6. Transplant Buddies

Drug Databases

  1. Cardinal Health
  2. RxList – The Internet Drug Index

Industry Links

  1. Accredo Therapeutics
  2. Aralast
  3. Baxter BioTherapeutics
  4. Centric Health Resources
  5. CSL Behring
  6. Coram Specialty Infusion Services
  7. Prolastin
  8. Grifols
  9. Zemaira

Some Alpha-1 Websites

  1. Associação Alfa1 de Portugal
  2. Alpha-1 Association
  3. Alpha-1 Association of Australia
  4. Alpha-1 Austria
  5. Alpha-1 Awareness – UK
  6. Alpha-1 Brazil
  7. Alpha-1 Canada
  8. Alpha-1 Denmark
  9. Alpha Europe Federation
  10. Alpha-1 France
  11. Alpha-1 Germany
  12. Alpha-1 Italy
  13. Alpha-1 Kids
  14. AlphaNet
  15. Alpha-1 Netherlands
  16. Alpha-1 New Zealand
  17. Alpha-1 Spain
  18. Alpha-1 Sweden
  19. Alpha-1 UK Support Group
  20. Breathing Better Living Well
  21. COPD-ALERT
  22. COPD-Support, Inc
  23. CureCOPD.blogspot.com
  24. Deutsche Emphysemgruppe e.V.
  25. EFFORTS
  26. Fundación Alfa-1 de Puerto Rico
  27. Fundepoc – Argentina
  28. Livsreisen-Mandalay.blogspot.de
  29. MartimMargaca.blogspot.com
  30. Second Wind Lung Transplant Association
  31. Spider Spun

More information

  1. Air Charity Network
  2. Association for the Accreditation of Human Research Protection Programs
  3. Center for Genetic Research Ethics & Law – Case Western Reserve University
  4. Centerwatch
  5. Children Network
  6. ClinicalTrials
  7. Coalition for the Advancement of Medical Research
  8. NIH REPORTER Database
  9. Patient Notification System
  10. Rare Lung Disease Consortium
  11. Tox Town
  12. Virtual Training Systems

Scientific Organizations

  1. American Academy of Family Practitioners (AAFP)
  2. American Association of Respiratory and Critical Care (AARC)
  3. American College of Chest Physicians (ACCP)
  4. American Liver Foundation (ALF)
  5. American Lung Association (ALA)
  6. American Thoracic Society (ATS)
  7. Asthma and Allergy Foundation of America (AAFA)
  8. COPD Foundation
  9. National Emphysema Foundation
  10. National Society of Genetic Counselors
  11. World Health Organization (WHO)