Alpha Stories

Nikki Hayes wears her L.A. Marathon medal and carries 26 roses — and a white mum for the .2 miles, from husband Jamie and son Parker.

Over the mountains, through the streets, Alphas make great strides

This week, two Alphas covered a lot of distance in both raising awareness and personal accomplishment — 110 miles and 26. read more...
Jonathan Maidment, 18, will realize his dream of hiking the Appalachian Trail — in service to the Alpha-1 community.

Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike

On Feb. read more...
Martim Margaça, age 6, underwent a transplant for Alpha-1 liver disease at 2 1/2 years old.

At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad

On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. read more...
Matt Dulin runs the Leadville 100 on Aug. 17-18 in memory of his dad, Rick Dulin.

In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance

“I’ll be challenging myself this year, running the Leadville 100,” Matt Dulin wrote on his fundraising page. read more...
Trent Walling

For Trent Walling,
Alpha-1 is no limitation

Trent Walling may be the third of six children but he surely knows how to stand out. read more...
Lisa Kosak copy

Lisa Kosak: Down to earth

For 12 years, Lisa Kosak lived the high life: 7,000 feet above sea level in in the mountains of Eagle, Colorado. read more...
Tunkhannock’s Don Davis stands behind his bike in his racing gear along with wife Barbara. Each year, Davis rides in the “Escape to the Cape,” a bicycle ride that raises money for Alpha-1 disease, with which Davis was diagnosed in 1988.

Alpha Don Davis overcomes
COPD, lives a full life

Don Davis grew up having asthma. read more...
Angela and Chris Town at the 2011 "Escape to the Cape" bike trek.

Angela Town – She never met an Alpha she didn’t like

“I have never met an Alpha I didn’t like. read more...
Jean McCathern

Allergies or something else? Alpha Jean McCathern found she didn’t have asthma after 24 years of misdiagnosis

The Washington Post To Jean McCathern, it seemed that the barrage of allergies — to pollen, mold, dust mites and cats — arose out of nowhere. read more...
The Shelton Family

Young Alpha receives unexpected present for Christmas

When Nathan Shelton was six years old, his mother Lora knew something was wrong with his health, because while most people didn’t notice, it was becoming more and more difficult for Nathan to keep up with his soccer team. read more...
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The Day that Alpha 1

A poem written by Lila M Thomason, in memory of her brother, Leon. read more...
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“Life: A Breath Away”

Helen “Cathy” Gould was diagnosed with Alpha-1 in 1999 after her health declined so rapidly that she was forced to retire. read more...
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My Precious Breath

Even as he waited on a lung transplant list, Jim Danley could sing – in fact, he made two CDs of himself performing classic popular songs as part of a fundraising effort to help cover transplant costs. read more...
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Every Breath

A poem for Nancy Danley 2/14/09 I close my eyes, lowering my head to take a bow in prayer A smile appears across my face, because I know you’re there. read more...
Vicki Josephs

The life of Vicki Joseph remembered: Memorial booklets are still available celebrating her life “in her own words”

Victoria “Vicki” Joseph’s budding career as a playwright and novelist was cut short when she died of chronic rejection of her transplanted lungs on Aug. read more...
Trine Engebretsen

Trine: Who says you need 14 pills a day after transplant?

Trine Engebretsen was being treated in the twelfth hospital to admit her in her short life – she was dying of Alpha- 1 liver disease, and she was only two years old. read more...
Taylor Fittje

Colorado Eagle Scout project encourages Alpha-1 awareness

Taylor Fittje wants to become an Eagle Scout, and so to reach that rank, he designed a community service project around Alpha-1 awareness. read more...
Sue Binnall

For Sue Binnall, volunteering became a way of life

Susan Binnall is a wife, a mother and a grandmother at home, but in the Alpha-1 community she’s nothing short of a hero. read more...
Steve Wolbrink

Pilot back in the skies after losing license due to Alpha-1

Steve Wolbrink loves to fly in fact, he loves it enough to fight for the right to do it. read more...
Skylar Haynes, 2004

Angel without Wings

Skylar Haynes simply loves to fish – she likes it better than playing with Barbies, better than painting pictures, better than dancing – and if you get to know her even a little bit, and you begin to see why. read more...