Alpha Stories

Kurt Gamlin with his wife, Betsy, and their grandchildren

At age 59, Alpha Kurt Gamlin prepares to compete in his fourth Ironman

Although Kurt Gamlin is a man of God, he is also a man of science. read more...
Dee Meisner displays the Foundation sign on her Mount Rainier climb.

Florida police officer carries Alpha flag
on climb up Mount Rainier

Dorothea “Dee” Meisner is a police officer in Cocoa, Florida. read more...
Heleen Groen

Heleen Groen, of Amsterdam, tells about her long, life-threatening route to treatment

Heleen Groen, 40, of Amsterdam, Netherlands, is an Alpha who has severe necrotizing panniculitis, a painful skin infection often accompanied by a rash, inflammation and skin ulcers. read more...
Jessica Davis in her ‘Believe in finding a cure for Alpha-1’ running shirt.

After Alpha-1, Wegener’s setbacks, Jessica Davis decides this is ‘my year to run’

Jessica Davis is an Alpha who also has granulomatosis with polyangiitis, also known as GPA or Wegener’s granulomatosis. read more...
The family: standing, from left, Michael O'Farrow and June Harmon; seated, Mary Rogers, Carol O'Farrow and Joyce West. At bottom is Kathleen Griffin.

Doctors surprised to find Alpha-1 in siblings of mixed-race family

Doctors have been surprised to find Alpha-1 in Kathleen Griffin’s family. read more...
Mary Anne Ferguson celebrates being able to 'walk and talk — and over all, to think.'

At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure

Mary Anne Ferguson comes from a family that is no stranger to longevity. read more...
Nikki Hayes wears her L.A. Marathon medal and carries 26 roses — and a white mum for the .2 miles, from husband Jamie and son Parker.

Over the mountains, through the streets, Alphas make great strides

This week, two Alphas covered a lot of distance in both raising awareness and personal accomplishment — 110 miles and 26. read more...
Jonathan Maidment, 18, will realize his dream of hiking the Appalachian Trail — in service to the Alpha-1 community.

Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike

On Feb. read more...
Martim Margaça, age 6, underwent a transplant for Alpha-1 liver disease at 2 1/2 years old.

At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad

On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. read more...
Matt Dulin runs the Leadville 100 on Aug. 17-18 in memory of his dad, Rick Dulin.

In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance

“I’ll be challenging myself this year, running the Leadville 100,” Matt Dulin wrote on his fundraising page. read more...
Trent Walling

For Trent Walling,
Alpha-1 is no limitation

Trent Walling may be the third of six children but he surely knows how to stand out. read more...
Lisa Kosak copy

Lisa Kosak: Down to earth

For 12 years, Lisa Kosak lived the high life: 7,000 feet above sea level in in the mountains of Eagle, Colorado. read more...
Tunkhannock’s Don Davis stands behind his bike in his racing gear along with wife Barbara. Each year, Davis rides in the “Escape to the Cape,” a bicycle ride that raises money for Alpha-1 disease, with which Davis was diagnosed in 1988.

Alpha Don Davis overcomes
COPD, lives a full life

Don Davis grew up having asthma. read more...
Angela and Chris Town at the 2011 "Escape to the Cape" bike trek.

Angela Town – She never met an Alpha she didn’t like

“I have never met an Alpha I didn’t like. read more...
Jean McCathern

Allergies or something else? Alpha Jean McCathern found she didn’t have asthma after 24 years of misdiagnosis

The Washington Post To Jean McCathern, it seemed that the barrage of allergies — to pollen, mold, dust mites and cats — arose out of nowhere. read more...
The Shelton Family

Young Alpha receives unexpected present for Christmas

When Nathan Shelton was six years old, his mother Lora knew something was wrong with his health, because while most people didn’t notice, it was becoming more and more difficult for Nathan to keep up with his soccer team. read more...
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The Day that Alpha 1

A poem written by Lila M Thomason, in memory of her brother, Leon. read more...
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“Life: A Breath Away”

Helen “Cathy” Gould was diagnosed with Alpha-1 in 1999 after her health declined so rapidly that she was forced to retire. read more...
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My Precious Breath

Even as he waited on a lung transplant list, Jim Danley could sing – in fact, he made two CDs of himself performing classic popular songs as part of a fundraising effort to help cover transplant costs. read more...
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Every Breath

A poem for Nancy Danley 2/14/09 I close my eyes, lowering my head to take a bow in prayer A smile appears across my face, because I know you’re there. read more...